Wednesday, September 14, 2011

An Outside Post

It is after 1:00 a.m. and as usual I cannot sleep.  I am still sleeping outside.  I don`t know why but the world does not seem as frightening when I am out here.  Panic attacks stay away.  Fear does not sleep beside me.  The world is a gentle place.  I look right now up into the night sky and think of you my readers who are closer to me than people I see often. I look at the moon (that is covered by west coast clouds right now) and I know many of you look up at that same moon and think of me. This makes me feel small and safe and loved.  Some of these posts have been so hard to write and it is your comments that keep me writing.


I am listening right now to Snatnam Kaur.  She is a Sikh.  Her music is beautiful and expresses what is in my heart.  The song thingy to the right is playing what I am listening to right now.


My mom.  *sigh*  I never expected her to improve on the palliative ward but that is what is happening.  Yes, the disease marches on but her pain is under control.  She is on lot of medication and seems OK.  She says things that are very funny like when she asked me if I would see to it that I would get rid of the sweat pants my dad wore today.  I have to admit, they are hideous.  But along with that she says things that are hurtful.  My mom would not want to hurt me in a million lifetimes and yet... 


She is also gets fixated on things.  Today she decided that she is leaving the hospital tomorrow because she needs new glasses. She told us that we are taking her in the morning to get glasses then she is going home in the afternoon for a nap.  Yes, my mom appears better but there is no way she is ever leaving the Palliative ward alive.  It hurts me that I can't do this for her.  It frustrates me that she asks. She gets snippy with me and my dad.  Does she not see how hard we are trying?  It is little silly things like when I tracked down her favourite ice cream only for me to find out she hates it and has never liked it ever.  Again, small and silly but I am trying so hard for her last days of living to be comfortable and maybe even nice.  This is what Hospice and Palliative are all about.  I don't know.  I am tired.  


In other news, we are still looking after my mom and dad's chocolate Lab.  He is NUTS and getting old (almost 13) and has the worst farts I have ever smelled come out of any creature.  He clears the top floor of our house.  He is also very funny.  He is a true Retriever and will chase after a ball from sun-up to bedtime.  So far he has found 11 balls in our yard left in the dense overgrown bushes of the previous owner's son.  The sad thing is I know he is getting homesick.  He had so much fun here the first week and now I can tell he just wants to go home.   Poor dog.


Tomorrow night I am taking a course on caring for chickens in your own backyard!  Eeeeee!  I am so excited!  I talked my 15 year old son into coming with me.  This time next year I expect to have my first eggs. I am going to get them as day old chicks so the think I am their mama.  I am going to name all of them and they will be my friends.  As my favourite author wrote about her first pet canary, "I shall be his god".  ha ha  What blasphemy!  What fun!


OK, it is 1:20 a.m. and I am going to attempt sleep.  If you are by chance reading this, I just may look up to the sky and fall asleep thinking of all of you. 

18 comments :

  1. Having your Mom on a lot of meds is a two edged sword. She is better able to communicate sometimes but doesn't always know what she is saying. I think you might be her sounding board for her frustrations. It's so hard. I will feel with you. I've been there. Much love your way.

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  2. I agree with Judy about your mama and the meds. She is literally not in her
    "right" mind.
    I can't wait for you to get chickens. You will love them. I promise you.

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  3. the dying process is an amazing thing... not good, or fun, or something any of us want to go through...but in and of itself, the dying process is amazing. how people's minds change, the things they once cherished they no longer can stand... the things once important no longer hold value... but the little "insignificant" things hold the shining spotlight of each day... my grandmother did many of the same things... and she said absolutely horrible things to all of us... it's like the filter between thought and speech disappears and so it just all spills out...

    i love that music! thank you for including it... i have it waiting for me on youtube...

    outside is a peaceful place at night... i spend a great deal of time out there in the night... the world is quiet, serene...

    my dad had chickens for a long time... they thought he was their parent... they used to take turns sitting on his lap in the mornings when he read the paper LOL he loved it!

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  4. I'm sure your mom appreciates what you do, she's just not herself, but at least her pain is lower. I can't wait to hear about raising chicks, that is something I really want to do in my future (we need a yard first). Good luck!

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  5. I know how hard this process is. My heart aches for you as you go through it. Ferrying those closest to us on to their next place is terrifying, exhausting and heart wrenching. She loves you and knows what you are doing for her, she does. You need to remember to love yourself for doing it as well.

    Chickens are a hoot. I miss having them and will have them again once my life settles down. In the meantime, I wish I knew someone with chickens so I'd have a trustworthy source of 'real' eggs.

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  6. Thinking of you sleeping outside and looking at the sky this morning. as I listen to the beautiful music you shared. Thank you.

    It must be confusing and very distressing to see your Mum behaving in ways that you do not recognise as her. You are bound to be feeling tired and frustrated. You are doing your best for your Mum and she will feel your care and love, i am sure.

    What fun to have a smelly lab and to be planning to adopt some baby chicks. Awww.

    Hope you slept. x

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  7. Is the dog allowed in to visit your Mother? If they say it's only service dogs, you can surely beg, borrow or buy one of those blue service dog jackets and fake it for a visit.

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  8. Good luck at Chick Care Class. Sounds like fun.

    Your reflections on your mom warm and break my heart at the same time. It's so hard when the mind is active and busy but the body is not cooperating. It's also hard to be at the receiving end of the frustration. I wish you peace, and good luck getting rid of the sweats.

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  9. i really felt very close to you reading your uncensored words. makes me want to sleep outside! this is a beautiful post. thank you for sharing a bit of yourself with us.

    hugs and love
    Elle

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  10. You are fortunate to have your dad with you to care for your mother. You are doing an extraordinary job.

    Chickens will be a new light in your life with a new focus.

    Your sleeping outside is a great idea -- I might try it sometime.

    -- barbara

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  11. Taloulah sent me here, after reading your poignant interview.

    It's hard watching a mother slowly disappear.
    But how wonderful, to watch chickens grow in your own backyard. I'm pleased t meet you Birdie.

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  12. you cause me to feel it all. this is a blessed thing.

    xo
    erin

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  13. I feel for you when it is tough to sleep...It is exhausting. I understand that your Mom has these phases and hope she gets better. Good luck with the chickens!

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  14. Thank you for stopping by and lending your peaceful, beautiful words to me. What a wonderful thing to find at the end of my day.

    I don't know if you took anytime to read up on me and the clan or the wonder girl Zoey, but she, she is our light that guides us daily. Every step. Her road has been arduous and unfair in many moments but she keeps going and we do also. The long and short: Down syndrome, major heart defect, stroke in utero that has left her with a CP diagnosis, seizures and rounding it out,leukemia. That journey with pediatric cancer is what has left us most change. The things we have seen on that floor, deep sorrow aside unspeakable joys,has allowed us to see beauty in the the most unlikely place.

    10 years before zoey came into our lives, I helped usher my friend,out of this life. It left me seeing the beauty, even in death and I was seriously thinking of going into hospice care. Then life happened and Zoey happened and I got side tracked. But I will return one day and most likely to pediatric hospice, where there is a great need.

    So there you are. More than you most likely anticipated when leaving your comment but wanted to introduce myself.Again, than you for your kind,kind words.

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  15. I think the dog would benefit from a visit to your Mom... he doesn't know what is going on, but a visit would tell him what he needs to know. Plan it for a time when other visitors aren't scheduled - I'll intend it happens.

    And chicks are a way to bring you some laughter, I am certain... long ago we had some; well worth the trouble. Blessings as you continue this journey with your Mom and hopefully you are getting some sleep.

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  16. Sweet Birdie, what a beautiful post. There is truly something nurturing and peaceful about being beneath the night's moon, laying upon the ground, listening to music that feeds the soul. I am so glad that you have these calming moments and that through all of this life still looks somewhat into the future with plans and continuance. Hugs and healing, Mina

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  17. Hey! Come let us chicken together! I'm getting chickens in the spring as well! Want to swap tips...tricks....ideas.....war stories....chicken chatter? Let's be chicken buddies!

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Come Let Us Reason Together...
Isaiah 1:18